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International Myeloma Foundation
США
Добавлен 23 сен 2010
Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest global organization focusing specifically on multiple myeloma. The IMF’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure.
Your support helps us provide a wide range of programs and services to the myeloma community in the areas of Research, Education, Support, and Advocacy.
The International Myeloma Foundation is a 501(c)(3) organization.
Learn more at www.myeloma.org
Your support helps us provide a wide range of programs and services to the myeloma community in the areas of Research, Education, Support, and Advocacy.
The International Myeloma Foundation is a 501(c)(3) organization.
Learn more at www.myeloma.org
African Americans in Myeloma: Diane Hunter's Call for Inclusion and Representation in Research
Join Diane Hunter as she sheds light on the disparities faced by African Americans in myeloma. In a candid conversation, Diane emphasizes the importance of inclusion and representation in research and clinical trials. By participating, we can gather specific information about our community's unique reactions and experiences, shaping better treatments. As patients, our voices matter-to pharmaceutical companies, researchers, doctors, nurses, and policymakers. Watch now to hear Diane's powerful message and empower change.
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Improving Lives | Finding the Cure
Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest organization focusing specifically on m...
_______________
Improving Lives | Finding the Cure
Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest organization focusing specifically on m...
Просмотров: 87
Видео
6-Year Multiple Myeloma Survivor Diane Hunter: Early Symptom Detection and Intervention Awareness
Просмотров 16215 часов назад
Discover Diane Hunter's inspiring journey with multiple myeloma and her call for increased symptom awareness. Many symptoms go unnoticed or are mistaken for common ailments, leading to missed opportunities for early diagnosis by primary care doctors. Join Diane as she emphasizes the importance of early detection and its potential to save lives and improve quality of life. Watch now to learn mor...
DREAMM-7: Belamaf+BVd vs DVd in RRMM, analyses of phase 3 trial comparing regimens after relapse
Просмотров 155День назад
In patients with relapsed/refractory multiple myeloma (RRMM) and poor prognostic features, there is a significant unmet need for effective treatments. The DREAMM-7 trial (NCT04246047) evaluated the efficacy of belantamab mafodotin (BVd) versus standard-of-care daratumumab plus bortezomib and dexamethasone (DVd) in RRMM patients with at least one prior line of treatment. The study demonstrated a...
Cevostamab Shows Promise in Hard-to-Treat Multiple Myeloma: Early CAMMA 2 Trial Results
Просмотров 299День назад
Cevostamab, a FcRH5xCD3 bispecific antibody, has shown promising activity in patients with heavily pre-treated relapsed/refractory multiple myeloma (RRMM), including those with prior exposure to BCMA-targeted agents. The Phase I/II CAMMA 2 study is evaluating the efficacy and safety of cevostamab in RRMM patients who are triple-class refractory and have received a prior BCMA-targeted antibody-d...
Myeloma Patient and Care Partner | A Day in the Life of Married Couple Jason and Chad
Просмотров 252День назад
Improving Lives | Finding the Cure Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest organization focusing specifically on multiple myeloma. The IMF’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of lives of myeloma patients while working toward prevention and a cure through our four found...
The IMF Iceland Cycling Expedition: A Journey to End Myeloma | An Interview with Dr. Rafat Abonour
Просмотров 148День назад
As the wind whispers through the rugged Icelandic terrain, a group of determined individuals prepare to embark on a journey unlike any other. Their mission: to pedal across this breathtaking landscape, not just for the “thrill of adventure,” but to support a cause close to their hearts-the fight against multiple myeloma. The cycling trip will support the International Myeloma Foundation’s Black...
International Myeloma Working Group (IMWG): Advancing Myeloma Research Through Global Collaboration
Просмотров 20814 дней назад
This video offers a glimpse into the International Myeloma Foundation's International Myeloma Working Group (IMWG), a collaboration of leading myeloma researchers and clinicians from around the world. The IMWG plays a critical role in: Conducting collaborative research projects across various scientific fields to accelerate advancements in myeloma treatment. Developing and publishing evidence-b...
Can stored stem cells be used after CAR T-cell therapy?
Просмотров 64614 дней назад
In this week's #AskDrDurie, myeloma expert Dr. Brian G.M. Durie answers the question: Can stored stem cells be used after CAR T-cell therapy? Improving Lives | Finding the Cure Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest organization focusing specifically on multiple myeloma. The IMF’s reach extends to more than 525,000 members in 140 countries worldwide...
Does being overweight increase the risk of developing multiple myeloma?
Просмотров 55014 дней назад
In this week's #AskDrDurie, myeloma expert Dr. Brian G.M. Durie answers the question: Does being overweight increase the risk of developing multiple myeloma? Improving Lives | Finding the Cure Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest organization focusing specifically on multiple myeloma. The IMF’s reach extends to more than 525,000 members in 140 cou...
How frequently should TECVAYLI (teclistamab) be given to myeloma patients?
Просмотров 50514 дней назад
In this week's #AskDrDurie, myeloma expert Dr. Brian G.M. Durie answers the question: How frequently should TECVAYLI (teclistamab) be given to myeloma patients? Improving Lives | Finding the Cure Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest organization focusing specifically on multiple myeloma. The IMF’s reach extends to more than 525,000 members in 140 ...
What is the current status of belantamab and its potential reapproval?
Просмотров 43021 день назад
In this week's #AskDrDurie, myeloma expert Dr. Brian G.M. Durie answers the question: What is the current status of belantamab and its potential reapproval? Improving Lives | Finding the Cure Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest organization focusing specifically on multiple myeloma. The IMF’s reach extends to more than 525,000 members in 140 coun...
Phase I Study: Dual Targeting BCMA & CD19 FASTCAR-T for High-Risk Multiple Myeloma
Просмотров 28221 день назад
Dr. Juan Du presents the results of a phase I study evaluating the safety and efficacy of GC012F, a dual-targeting BCMA and CD19 CAR-T therapy, as first-line therapy for transplant-eligible high-risk newly diagnosed multiple myeloma (NDMM) patients. The study included 22 patients with high-risk features, and the results showed that GC012F achieved deep and durable responses, with a 100% overall...
Efficacy, Safety, and Determination of ABBV-383, a BCMA Bispecific Antibody, in Patients with RRMM
Просмотров 17121 день назад
Efficacy, Safety, and Determination of RP2D of ABBV-383, a BCMA Bispecific Antibody, in Patients with Relapsed/Refractory Multiple Myeloma (RRMM) Summary: The phase 1 trial of ABBV-383, a BCMA bispecific antibody, in patients with relapsed/refractory multiple myeloma (RRMM) has demonstrated promising activity. ABBV-383, with its unique design and convenient dosing schedule, has shown efficacy a...
The IMF Iceland Cycling Expedition: A Journey to End Myeloma | Cristina Gasparetto & Thomas Goode
Просмотров 6121 день назад
As the wind whispers through the rugged Icelandic terrain, a group of determined individuals prepare to embark on a journey unlike any other. Their mission: to pedal across this breathtaking landscape, not just for the “thrill of adventure,” but to support a cause close to their hearts-the fight against multiple myeloma. The cycling trip will support the International Myeloma Foundation’s Black...
Isatuximab, Lenalidomide, Bortezomib, and Dex for Newly-Diagnosed Multiple Myeloma: GMMG-HD7
Просмотров 34021 день назад
Abstract Title: Isatuximab, Lenalidomide, Bortezomib, and Dexamethasone for Newly-Diagnosed, Transplant-Eligible Multiple Myeloma: Interim Analysis of the GMMG-HD7 Trial Summary: The GMMG-HD7 trial evaluated the efficacy of adding isatuximab (Isa) to standard-of-care induction therapy followed by high-dose therapy (HDT) and autologous stem cell transplantation (ASCT) in transplant-eligible pati...
Top Myeloma Research Presented at ASCO & EHA 2024
Просмотров 1,2 тыс.21 день назад
Top Myeloma Research Presented at ASCO & EHA 2024
Are four drug combinations recommended for older transplant in eligible myeloma patients?
Просмотров 45328 дней назад
Are four drug combinations recommended for older transplant in eligible myeloma patients?
Class comparison of BCMA-directed therapies in relapsed multiple myeloma
Просмотров 339Месяц назад
Class comparison of BCMA-directed therapies in relapsed multiple myeloma
MajesTEC-1: Longer Follow-up Teclistamab + Tocilizumab Prophylaxis for CRS in RR multiple myeloma
Просмотров 165Месяц назад
MajesTEC-1: Longer Follow-up Teclistamab Tocilizumab Prophylaxis for CRS in RR multiple myeloma
Jerry's CAR T-Cell Therapy Experience: From Preparation to Procedure | Living Well with Myeloma
Просмотров 252Месяц назад
Jerry's CAR T-Cell Therapy Experience: From Preparation to Procedure | Living Well with Myeloma
IMWG Conference Series 2024: Making Sense of Treatment
Просмотров 956Месяц назад
IMWG Conference Series 2024: Making Sense of Treatment
Linvoseltamab for RR Multiple Myeloma: Deep, Durable Responses at 14-Month Follow-Up (LINKER-MM1)
Просмотров 384Месяц назад
Linvoseltamab for RR Multiple Myeloma: Deep, Durable Responses at 14-Month Follow-Up (LINKER-MM1)
What does the FDA approval of MRD testing for myeloma mean for patients and drug development?
Просмотров 825Месяц назад
What does the FDA approval of MRD testing for myeloma mean for patients and drug development?
Idecabtagene Vicleucel for High-Risk Early Relapse Multiple Myeloma - KarMMa-2 Study
Просмотров 357Месяц назад
Idecabtagene Vicleucel for High-Risk Early Relapse Multiple Myeloma - KarMMa-2 Study
Isatuximab + Len/Dex/Bortezomib vs IsaRd in Newly Diagnosed Transplant Ineligible Multiple Myeloma
Просмотров 117Месяц назад
Isatuximab Len/Dex/Bortezomib vs IsaRd in Newly Diagnosed Transplant Ineligible Multiple Myeloma
#IMFGMAN: Global Myeloma Action Network Leads Advocacy Efforts Worldwide.
Просмотров 550Месяц назад
#IMFGMAN: Global Myeloma Action Network Leads Advocacy Efforts Worldwide.
Isa-VRd vs VRd for Transplant-Ineligible Patients with Newly Diagnosed Multiple Myeloma (IMROZ)
Просмотров 271Месяц назад
Isa-VRd vs VRd for Transplant-Ineligible Patients with Newly Diagnosed Multiple Myeloma (IMROZ)
DREAMM-8: Belantamab mafodotin + pomalidomide and dex shows improved outcomes in RR multiple myeloma
Просмотров 312Месяц назад
DREAMM-8: Belantamab mafodotin pomalidomide and dex shows improved outcomes in RR multiple myeloma
The IMF Iceland Cycling Expedition (ICE): A Journey to End Myeloma | An Interview with Shawn Twigg
Просмотров 80Месяц назад
The IMF Iceland Cycling Expedition (ICE): A Journey to End Myeloma | An Interview with Shawn Twigg
A Rigorous Journey to End Myeloma | The Iceland Cycling Expedition to Fund Myeloma Research
Просмотров 174Месяц назад
A Rigorous Journey to End Myeloma | The Iceland Cycling Expedition to Fund Myeloma Research
Why didn't this video list EARLY symptoms of MM? Instead of just saying 'early detection yay'
There is hope
Thanks for sharing your story. ❤ I have recently been diagnosed with Smoldering Multiple Myeloma, I too have a high M spike and also I have the Free light chains. How many years did you say you went by until the myeloma became more active and you started therapy? Also, when you went through the induction was it really hard on your body? What symptoms did you have from the chemo? Thank you guys!
So if you were smoldering your bone marrow biopsy must have been less then 20% involvement correct?
I'm 72 years old have MM with fractured vertebrae so I am thankful for the videos. Some of the accents are a little hard to understand so the sub titles are very helpful.
How lucky you are!
Go Dr Abonour, that's my Myeloma Specialist, he's the best!!
❤❤❤
Very informative,thank you
Thank you Dr. Durie
Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide
Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide
Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide
Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide
Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide
Can mass spectrometry take the place of a bone marrow biopsy?
I'm stage 3 had a fractured vertebrae and surgery. I'm 72 years old and in great shape, is 5 years a typical survival rate.
A number of posts below (i.e. entered before 07/07/24) mention that "... my oncologist has not explained all these options ...". My experience is that it is extremely important to have MM specialist looking at your case. Not just an oncologist or a transplant specialist or a hematologist but somebody whose main focus is multiple myeloma. I understand that a smaller hospitals may not have such people. If this is the case try to find somebody you can see 3-4 times per year in a larger city/hospital or even somebody you can meet on line. The point is that MM is an area of very active research, there are dozen (or more) options to go with, new drugs are approved every year and not every doctor has time to follow it up.
Would that signify that losing weight extend remisión?
I would love to know this aswell.
Thank you
Thank you!
Good
Nice
Thank you. A great overview!
Sir kindly talk about one side hemorrhagic plural effusion in myloma patients
Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide
Have a question? The IMF's InfoLine team consistently provides callers with the best information about multiple myeloma in a caring and compassionate manner. Infoline@myeloma.org 800-452 CURE (2873) US & Canada 1-818-487-7455 Worldwide
Strong couple and strong survivor❤
What did your blood work look like?
Use subtitles
Thank You
I have one kidney due to donating the other one. Recently, the one kidney is now at stage 3 kidney failure as Acute Kidney Injury unspecified, and diagnosed with MGUS and experiencing much pain, weakness, fatigue, and numbness and tingling. Is there anything different to consider with one kidney?
My mother has myeloma and her doctor always knocks her out for the BMB.
Thank you on behalf of the rest of us.
GOD bless Tom, praying for my complete physical healing for GOD is my JEHOVAH RAPHA, my DIVINE HEALER, AMEN🙏🙏🙏
I had to go to a different doctor and they found out I had multiple myeloma. The first doctor Dr almond ran me around for 7 months and said I just wanted pills even though I was working
Does it cause GVHD like Monocolonial antibodies 😮
My father also but but he’s cancer therapy did work.But hè died from a influenza virus in the hospital,and I think my brother has infected him😢😢😢😢.
I have Mgus attributed by my oncologist to long term use of sertraline, an SSRI. After withdrawal, I've developed neuropathy and tinnitus, occasional shooting nerve pains and brief migraines.
Adrienne is such an inspiration!
Thank you for sharing your story. I've been diagnosed for mgus and have constant bone pain in my leg, but I no on ever investigates. I'm very concerned about it hearing your story is motivating me to press the issue and beg or demand a Ct scan ASAP
Thank you Dr. Joe for your clarity on bi-specifics. Your explanations are the best. Maybe on the next video, skip the background music. It’s a little distracting.
does this work in del17p ?
This sounds disgusting and damaging. Russian roulette.
Thank you 🙏🏾 😊
my mother patient of Multiple Myeloma aged 63 year old last year went through ASCT and now she is under maintenance therapy with linolidamide 10mg for 21 days and one week rest again repeated but now she is frequently suffering from anxiety, fatigue and constipation she is not fit as like she was well before transplant is there any other therapy in maintenance can be give like immunotherapy or some thing else with low side effects and fatigue after ASCT she has not given any immunizations what are the immunizations which she has to take
Hi Beth! Toronto Canada. Diagnosed 13 months ago and post T-Cell transfushion. MyHebogloben has responded from 72 0n Febuary 28th to last weeks reading of 124! I can walk and move around again seemingly as free as I did before my symptoms began in March of 2023. I am so thankful and along with some fantastic care I have recieved from the medical community here in the Kitchener, Ontario region, it is my belief that my positive attitude was second in things that have supported this positive response and speedy recovery that I have and am experiencing. humbly said! I had my Stem cell transplant complleted on January 4th 2024 and again my Hemogloben went from the low 70's On average since January to 90 on Mar 28th with a 13 point increase in one week ending on March 28th. My Oncologist whom I seen 1 week ago informed me she wished to start me on a maintance program after a one month break from last week. My investigations so far on what to expect in the mediications involved in such a maintence progtam has left me somewhat anixious on what to expect as it appears we are on the edge of a whole new round of medications to be introduced through research and even some new considerations within the medical field on different considerations on which avenue one professional verses the other may lead their individual patients. Any general consideration or guidelines you could share with me that would put me in a position to be understanding of the different choices I will be discussing with my care team?
Thanks for the information 🙏
Try to give the info, stop opinions, feel good, appreciate, great meetings, 80% babble, I want to learn specifics